Themiya’s story: living with dementia with Lewy bodies

Same thing happened to my dad. Hallucinating, seeing people in the house, that led on to him stopping eating and drinking altogether. Spent the last 6 months in hospital. Would act out dreams in a vivid lucid manner, haing psychotic episodes. Was having falls due to postural hypotension, was initially diagnosed with parkinsons, however the trail of symptoms and the order of them occuring, they are basically 80 % sure its now LB dementia. He responded great to Rivastigmine, on levadopa. Overall, is doing alot better now, no more hallucinations, on drug trials when he gets worse, but generally he is massively improved than from christmas time. So will see what the prognosis is, it could be significant amount of time he is good still, or just for a few months. Just have to bless each day.

I am a Caregiver and my client is 85, she suffers from Hallucinations. Sees little people, sometimes is only audio hearing people in the house. She walks good but is slumped over to a degree.. Does most everything for herself. She can be easily agitated and can go from being on her game as much as possible to confused within the hour. In fact it is always that fast, then she can get smarter. Never heard of dementia being this way so I think she has Lewy Body Dementia. Family doesn't seem to want to know... so I'll keep it to myself. Been ensuring we walk daily to keep her limbs from getting stiff, they say she has arthritis and maybe so but...

So sad

My mum was the same it took 10 years looking back for her to be diagnosed

I have just started to have dementia. It is most likely Lewy body. It's an odd place to be, mentally. I just want supporters to know that I am not uncomfortable. I am forgetful, confused, and such... but I am not uncomfortable. We all go out someway. All-in-all, this is not a bad way to do it.
Do remember that as a brain dies, pieces of us go with it. If we act out, you are not the reason. If we loved you before, we love you now.

I believe that my dad had Lewy Body dementia. He was diagnosed with dementia with Parkinson. He ended up taking his life earlier this year in Janaury.

Get him on a all fruit diet and watch the protein/mucus clear up on the brain. If he have proteins on the brain than that should tell you to stop feeding him meat.

To the people in this video thank you for taking the time out of your personal life to share with us what it's like for your family going through this journey with your father god bless you and your family
It's stories like this that help other families I wish you were not on here with this story but your story helps people like me who's father is going through this what is ahead and what we need to know to make life easier for everyone being part of this journey with a loved one who has any kind of dementia alzimers

What's frustrating to me is that there is a medicine that very well may be a game changer for DLB: Neflamapimod. After Stage 2 trials, the findings were that it actually modifies the patients physiology in a helpful way; it works! It was granted FDA fast track status in 2019, but progress seems to have stalled. Maybe b/c of the COVID lockdowns? It's especially frustrating b/c we see how quick they rolled out the COVID vaccines. Something which can help my mom, who has not yet progressed to any Parkinson's symptoms, is out there, but it may never be approved in time.

So its aniloid black on tbe brai. Not rly the holes from footbell

My grandad died if this dementia/Alzheimer’s disease I wish I had known this to save him

My mom was diagnosed with mild dementia in 2016 and now she is completely free from dementia with Dr. Rohan's herbal supplements. you can reach him via dr.rohanronjohn@gmail.com it may also help you..

Hopefully they find a cure

Much love to you all.♥️

God Bless You & Your Beautiful Family❤🙏🏻

Do you sing in Sinhalese, your Father has a lovely voice reminds me of my Grandfather singing.

My husband was diagnosed with multifactorial Alzheimer's disease. This also triggered epileptic fits. To be blunt, all the prescription drugs we’ve used did not yield any positive improvement. Lately I have found that Homeocure Worldwide natural treatment along with adopting a healthy lifestyle has helped him recover completely. You may look it up for more info: homeocureworldwide.blogspot.com

My dad was diagnosed with Parkinson’s-Dementia complex but I think he had Lewy Body dementia. He always had hallucinations and falls during the early stages. He recently died after 5 years of battling this disease. He became nonverbal so quickly. Everything happened so fast, we were not ready to let him go. Once swallowing problems begin, that’s it.

Thanks to Dr osaze who cured me of Anemia and Dementia with his herbal medication, you can also contact him on his email on drosazeherbal@gmail.com or whatsap him on +2347089275769

..

What a life, I hope we all have to courage to laugh,and love each other despite all this bullshit we have to deal with

Scottish ?

Thank you Themiya.

Dementia is a nightmare. Find a cure !

Thank you for sharing, Themiya … ♥

This is so sad, but anyone who has looked after a loved one with dementia will know how hard it is physically and mentally. My heart goes out to anyone/everyone affected by Alzheimer/Dementia. A huge shout out to any caregiver doing this alone! I feel your journey. I feel your pain because I've been there. My mom was also diagnosed in her 60s. Feeling absolutely shattered, heartbroken and drained , working with different physicians across the country with little or no improvement. I was exhausted and overwhelmed to look any further. Crying a lot through frustration, anger and despair, But today with the help of Homeocure Worldwide Natural Medicine, my mother is completely healthy and well again. I think we only need more support and sunlight to overcome this dreadful disease. Search for support regardless and don't stop until you get it. With Homeocure Worldwide treatment, there is hope, don't give up! Check out his blog for useful info️; homeocureworldwide.blogspot.com

What he saying?

So Estelle Getty died 85 from this is that the age it starts?

Been there with my Dad,...exactly EXACTLY the same story

This is (in USA) exactly what Joe Biden is suffering.

My grandma has Parkinson’s, and lately has been having hallucinations she sees people sitting on her sofa, and goes to hit them and they are not there. She did have a water infection, could it be that or dementia?

Nicely explained

My mother has been diagnosed with LEWY body dementia. It’s a tough time but we are taking it day by day. Much thanks for this video and shining a light on this horrible disease.

My mother suffered from Lewy Bodies dementia and she had very similar hallucinations. Her cognitive functions got worse over time but she never forgot who we were, even at the end, so there is comfort in that.

Closed caption not needed. The lady has an accent and is perfectly understandable.

Thank you! It's comforting to know that it's not just us going through this...